Showing posts with label non-Hodgkins lymphoma. Show all posts
Showing posts with label non-Hodgkins lymphoma. Show all posts

Wednesday, April 13, 2011

Survivors














A Kiwi friend sent me a package containing a pair of remembrance poppies (in honor of Anzac Day on April 25) and a poster bearing a poem entitled “Becoming Something Other” in which the author, a man named Chris Knox, faces mortality through the lens of his own father’s failing health. Rendering the piece all the more poignant is the fact that, according to the author’s blurb, Knox – “a New Zealand musician, songwriter, cartoonist & critic” - himself suffered “a life-altering stroke” in June 2009. His friends and fans subsequently released a benefit album containing covers of Knox’s music to support him in his recovery.

This struck a particular chord for me as a good friend of mine suffered a massive stroke in late 2008 – two days after his 35th birthday – prior to which he had been in otherwise very good health. He was fortunate in that his mental capacities remained more or less fully intact. However, the physical ramifications are something else entirely, having included countless surgeries, hundreds of hours of physical therapy and the need to completely relearn such basic skills as walking, to name but a few.

We talk on the phone regularly, at least once every week or two. When I underwent chemotherapy for non-Hodgkin’s lymphoma in 2007, he always made a point of calling me the evening following my treatment. He’d ask how it all went, how it was all going, but mostly we talked bullshit: movies, music, stories from college (where we first met one strange and twisted evening after I nearly smacked him in the head with an ironing board). Bottom line, he recognized two things: 1) that quite often, at the end of the day, the last thing I wanted to talk about was cancer, and 2) just how much I truly valued the thought – the genuine friendship.

So, when I received word of his stroke, I had some firsthand idea of what awaited him, at least insofar as the reactions of others were concerned – the initial (and sincere) outpouring of support from well-wishers that would, in time, fade to a trickle once the “novelty” of the situation wore off and a good many of them redirected their attention to their own problems, their own lives. It’s nothing personal – that’s just how it goes.

Though not his only source of conversation by any measure, I’ve nevertheless made a point of talking with him as frequently as possible – bullshit stuff most of the time, more serious matters when they’re obviously weighing on him – being all too familiar with the statute of limitations on casual sympathy. We also share an acute awareness of our own mortality statistically beyond our years.

Still, things are a bit different this time around. When I was sick, he was a picture of health. But for however close to death I came, within a year my treatments were done, my hair was growing back and I was looking forward to making the most at this new lease on life. Today, four years later, I’m the healthiest I’ve been since high school, the only physical relics of my ordeal being a rather small biopsy scar and a tiny pill I take every morning – a very small price, indeed. That said I cannot begin to imagine the uncertainty he must face with the dawn of each new day.

It’s interesting – though I was not familiar with Knox or his music before opening this morning’s mail, such “life-altering” occurrences recognize no synthetic boundaries like Race, Religion, Nationality or Tax Bracket. We’re all fellow patients and, so long as we draw breath, we are all survivors.

So here’s to ya, Knox – good luck, and Godspeed (whatever the hell that means)...


Thursday, February 18, 2010

School of Rock Concert This Saturday to Support Leukemia & Lymphoma Society of Maryland

Hi, all,

Per below....Dr. Walker and his staff treated me for non-Hodgkin's lymphoma nearly three years ago, and without them I wouldn't be here. This event, which he has helped to orchestrate, benefits the Leukemia & Lymphoma Society of Maryland. And if you know of anyone who may be interested in this event, please feel free to share. Thanks! - WPT


School of Rock Baltimore
Presents
A Concert to Benefit
The Leukemia & Lymphoma Society of Maryland
Saturday, February 20, 2010
7:00 p.m.
Bourbon Street Baltimore

This year, for the first time ever, the School of Rock "Best of Season" show will be a concert to benefit the Maryland Chapter of the Leukemia & Lymphoma Society (LLS). LLS is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.

School of Rock Baltimore is partnering with Dr. Stan Walker, a Baltimore Medical Oncologist who has been nominated for the LLS Man of the Year. The Leukemia & Lymphoma Society's Man & Woman of the Year (MWOY) campaign is a fundraising competition in communities across the U.S. in which participants vie for the title of Man or Woman of the Year. They raise funds for blood cancer research in honor of local children who are blood cancer survivors, the Boy & Girl of the Year. MWOY is one of hundreds of fundraising events held each year by LLS.

Like previous "Best of Season" shows, this benefit concert will include student-performed songs from each of the Winter 2010 seasonal shows. In addition, there will be performances by special musical guests, live and silent auctions, and appearances by local celebrities. We hope to show just how strong our School of Rock family is by raising a significant amount of money for this worthy charity.


How can you help?

* Buy tickets! 100% of the ticket sales go directly to LLS. Tickets for the benefit are just $20 each* and will be available beginning Saturday, January 9th at the Clapton show. After the 9th, tickets will be on sale at the School of Rock and upcoming seasonal shows.

* Sell tickets! Reach out to family, friends, neighbors, and coworkers for support for this special event. Many of you work for companies that will buy blocks of tickets as a charitable donation so please check into that. Again, 100% of the ticket sales will go directly to LLS.

* Donate and solicit auction items/services. To help us reach our fundraising goal, we need items/services for live and silent auctions. Contact School of Rock parent Chris Tittel at 443-956-3499 or ctittel@comcast.net with auction items. 100% of the money raised at the auction will go to the charity!

* Monetary donations. Monetary donations are greatly appreciated and provide a great way to participate if you can't attend the benefit. Many employers offer a charitable donation-matching program so please check with your employer. We will collect donations at the School of Rock and at each of the seasonal shows.
Again, 100% of all proceeds will be donated to the Maryland Chapter of the Leukemia & Lymphoma Society -- that means 100% of all ticket sales, 100% of all auction items, and 100% of all donations.
So, spread the word, talk it up, and let's fill the venue. Let's give back and help our kids help others.

* Each School of Rock student performing in the "Best of Season" show gets into the show for free. Each School of Rock family will be offered their first two tickets for the price of one. Each additional ticket will be $20.

Tuesday, September 22, 2009

Eight-Stone Press Fights Cancer, Provides Breast Support



BALTIMORE – Because I love boobies (and their owners) so much, Eight-Stone Press will participate in the Susan G. Komen Race for the Cure, for the third consecutive year, on Sunday, October 18, 2009, in Hunt Valley, Maryland. Once again, I will be a part of the Oncology Center of Central Baltimore team – the people who, quite literally, saved my life.

Two years ago this month, I wrapped up six months of intensive chemotherapy for a particularly aggressive form of non-Hodgkin’s lymphoma that could have well otherwise killed me. To date, the cancer remains in remission, and I feel as healthy as I ever did (if not better), and I wholly attribute this fact to the professionalism and compassion of Dr. Stanley Walker and his top-notch team of nurses and office staff at the Oncology Center of Central Baltimore.

The Komen Race for the Cure is the Oncology Center’s main fundraising event of the year. As such, I feel it is nothing short of my duty to help those who helped me and, in so doing, help others battling any manifestation of this terrible disease. I participated in my first Komen Race about one month after my final round of chemo. Three years later, I’m back at it, still going strong.

These are tough, lean times for everyone, to be sure. But as any who has ever suffered this disease firsthand – be it themselves, family or friends – will attest, things can get awfully tougher. It is for them that I ask you to join me on Race day (10/18) – or, if you are unable to attend, to kindly make a donation on my fundraising page below (and remember, no amount is too small, or too arbitrary):

http://tinyurl.com/ldgwlo

Where do the funds go, you ask? Well, “at least 25 percent of net proceeds are used to support the Komen Award and Research Grant Program. Funding national research is vital as this is where we believe the cures for breast cancer will be found. Since Maryland is home to many prestigious research institutions, Komen funding often goes to cutting-edge research happening right here in Maryland.

“Up to 75 percent of net proceeds stay in Maryland to fund grants that provide transportation to appointments, financial support, appropriate diagnostic testing, and a comprehensive range of follow-up services. Because early detection is the best protection for breast cancer, Komen Maryland sponsors grants that increase the number of women who have annual mammograms and clinical breast exam screenings. Komen grants continue to focus on recruiting patients for clinical trials.

“The programs we fund help to overcome the cultural, social, educational and financial barriers that prevent people from receiving life saving treatment right now.”

For more information on the Komen Race for the Cure, visit www.komenmd.org. And thank you all for your kindness and support over the years.

Stay healthy,

WP Tandy, Editor
Eight-Stone Press
P.O. Box 11064
Baltimore, Maryland 21212
E-mail: wpt@eightstonepress.com
Website: http://www.eightstonepress.com
Facebook: http://www.facebook.com/wptandy
Twitter: http://www.twitter.com/eightstonepress
MySpace: http://www.myspace.com/eightstonepress


-30-

Monday, September 21, 2009

Late for Work

I arrived at work late this morning, having paid a visit to the oncology center for my regular checkup. Since undergoing chemotherapy, the frequency of such visits has gone from once a week to once every other month.

Today was the first day for the temp nurse who drew my blood. She’s filling in for one of the regular nurses while she’s out on maternity leave.

“I used to have great veins before I started coming here,” I warned her.

She spent a minute or two trying to spike the chemo-scarred vein inside my left elbow without striking paydirt. “Try somewhere else?” she asked after noticing my obvious discomfort.

“Please.” She had better luck with the back of my hand.

“That one just kept rolling out of the way,” she said, indicating the fruitless vein near my elbow. “If I were you, I’d tell everyone to just stay away from that one, as it’s basically kaput.”

The subsequent checkup went off without a hitch. Blood counts were good – or good for me, anyway. No signs, no symptoms. My doctor asked if I’d be participating in the Komen Race for the Cure again this year. I’ve walked with his team for the big annual fundraiser, geared specifically toward breast cancer (though I had non-Hodgkin’s lymphoma), every year since I finished treatment.

“Absolutely,” I said. This year will be my third walking with them.

“Great,” he said. “We need your support, not to mention that picture of you jumping through the fire.” He grinned at the mention of the profile picture I use on my fundraising homepage. He likes the picture, and from what he’s said, I gather there are few pix of his “alumni” leaping over bonfires.



On my way out of the office, I stopped by the front desk to schedule an appointment for my quarterly CT scan. I didn’t even recognize my friend Jeff nearby; rather, it was he who noticed me.

“There’s my friend!” he said with a big smile. I turned and smiled, and nearly at once realized who it was.

“Jeff!” I said, and we shook hands. I’d venture to guess Jeff is in his early 40s, and I’m ashamed to admit I don’t recall the exact type of cancer he was facing treatment for. For some reason, lung cancer comes to mind. We first met around the time I was finishing my treatment. We’d pass each other in the waiting area, or in the hospital hallways outside the oncology center. When I’d last seen him, nearly a year earlier, he was lean (though not alarmingly so), and his hair had just started falling out from a new treatment he had started.

But this morning he looked different. His head was topped with the soft, fine, wispy hair of a cancer patient, but his face and body were extraordinarily bloated – likely the product of steroids that comprise part of his treatment. He looked tired, though his expression suggested that seeing me had mustered within him genuine enthusiasm.

But the most notable difference this morning was that Jeff was in a wheelchair.

The receptionist called his name, indicating that it was his turn to head back to see the doctor. A young woman stood up from one of the nearby chairs and walked over to wheel him back. Jeff introduced her as his wife, and we shook hands and exchanged a few more words.

“Stay strong, Jeff,” I said, “and I will see you soon again.”

He smiled as his wife took the handles on his chair. “You…you have kids, don’t you?” he asked.

I nodded. “One,” I said. “He’s three.”

“Oh,” Jeff’s wife said, kindly. “We have a 3-year-old, too.”

I smiled. “They’re a handful.” We all laughed, and with that they disappeared down the long, bright hallway that leads to the nurses’ station – and the infusion room.

I was 31 at the time of my diagnosis, my son, just 13-months-old. When the word “cancer” was first suggested to me, it drove everything else in the world from my mind – everything, except for him. Hardly a day goes by that I don’t think of that, and I hope he was young enough at the time that he will have no memories of the whole ordeal.

My next CT scan is scheduled for five weeks from now – just before my next oncology checkup. I picked up the appointment form, put on my sunglasses and walked out into the warm morning light.

I was 90 minutes late for work.

And when I got there, I cried.